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PFAS and multimorbidity among a random sample of patients from the University of North Carolina Healthcare System

Metadata Updated: October 28, 2022

This dataset contains electronic health records used to study associations between PFAS occurrence and multimorbidity in a random sample of UNC Healthcare system patients. The dataset contains the medical record number to uniquely identify each individual as well as information on PFAS occurrence at the zip code level, the zip code of residence for each individual, chronic disease diagnoses, patient demographics, and neighborhood socioeconomic information from the 2010 US Census. This dataset is not publicly accessible because: EPA cannot release personally identifiable information regarding living individuals, according to the Privacy Act and the Freedom of Information Act (FOIA). This dataset contains information about human research subjects. Because there is potential to identify individual participants and disclose personal information, either alone or in combination with other datasets, individual level data are not appropriate to post for public access. Restricted access may be granted to authorized persons by contacting the party listed. It can be accessed through the following means: Because this data has PII from electronic health records the data can only be accessed with an approved IRB application. Project analytic code is available at L:/PRIV/EPHD_CRB/Cavin/CARES/Project Analytic Code/Cavin Ward/PFAS Chronic Disease and Multimorbidity. Format: This data is formatted as a R dataframe and associated comma-delimited flat text file. The data has the medical record number to uniquely identify each individual (which also serves as the primary key for the dataset), as well as information on the occurrence of PFAS contamination at the zip code level, socioeconomic data at the census tract level from the 2010 US Census, demographics, and the presence of chronic disease as well as multimorbidity (the presence of two or more chronic diseases).

This dataset is associated with the following publication: Ward-Caviness, C., J. Moyer, A. Weaver, R. Devlin, and D. Diazsanchez. Associations between PFAS occurrence and multimorbidity as observed in an electronic health record cohort. Environmental Epidemiology. Wolters Kluwer, Alphen aan den Rijn, NETHERLANDS, 6(4): p e217, (2022).

Access & Use Information

Restricted: This dataset can only be accessed or used under certain conditions. License: See this page for license information.

Downloads & Resources

No file downloads have been provided. The publisher may provide downloads in the future or they may be available from their other links.

References

https://doi.org/10.1097/ee9.0000000000000217
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9374186

Dates

Metadata Created Date October 28, 2022
Metadata Updated Date October 28, 2022

Metadata Source

Harvested from EPA ScienceHub

Additional Metadata

Resource Type Dataset
Metadata Created Date October 28, 2022
Metadata Updated Date October 28, 2022
Publisher U.S. EPA Office of Research and Development (ORD)
Maintainer
Identifier https://doi.org/10.23719/1527801
Data Last Modified 2022-06-30
Rights EPA Category: Personally Identifiable Information (PII), NARA Category: Privacy
Public Access Level restricted public
Bureau Code 020:00
Schema Version https://project-open-data.cio.gov/v1.1/schema
Harvest Object Id 94ec6b13-d64f-493c-bb17-75f368fe74d7
Harvest Source Id 04b59eaf-ae53-4066-93db-80f2ed0df446
Harvest Source Title EPA ScienceHub
License https://pasteur.epa.gov/license/sciencehub-license-non-epa-generated.html
Program Code 020:000
Publisher Hierarchy U.S. Government > U.S. Environmental Protection Agency > U.S. EPA Office of Research and Development (ORD)
Related Documents https://doi.org/10.1097/ee9.0000000000000217, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9374186
Source Datajson Identifier True
Source Hash 6e1b571d293c2d10bd21a08576147d71a0aeef29
Source Schema Version 1.1

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